tag:blogger.com,1999:blog-91579299260896170612011-11-27T19:52:14.864-05:00Stories of Coping and Living with Multiple Sclerosis... sometimes humorous, often sarcastic, always real!Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.comBlogger121100tag:blogger.com,1999:blog-9157929926089617061.post-77901043078802351252009-08-30T09:36:00.004-04:002009-08-30T09:44:42.140-04:00

My address has changed -- just wanted to try designing my own blog using WordPress... Just restless I guess.Please come visit, join up or subscribe to the RSS feeds at MS and Living: http://bit.ly/3wlYghI'm also on twitter at: www.twitter.com/msandlivingHave a Wonderful Day!Nick

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0tag:blogger.com,1999:blog-9157929926089617061.post-40683848244267527432009-08-14T09:19:00.006-04:002009-08-22T15:36:51.052-04:00

Yesterday was a great day for me - mostly because I got to go to lunch with a beautiful young woman, and listen to her hopes and dreams for the future.I listened to my middle child talk about her trip to Europe this summer and the experiences they had there, why she wanted to change her major to English from Psychology, and how the university is changing the rules for seating during the football

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0tag:blogger.com,1999:blog-9157929926089617061.post-60796942152256450852009-08-02T11:04:00.022-04:002009-08-22T15:35:15.939-04:00

Well, everyone in my house seems to be sleeping in this morning, so I thought I would catch up on some of my writing...As I was "walking" to my computer room, I stubbed my left toe as one with drop foot does, and it made me start to wonder when the last time I "didn't" have a reason for tripping.As with my first childhood memory - the memory of my first "trip" is vivid and blurred at the same

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0tag:blogger.com,1999:blog-9157929926089617061.post-19399120501619368312009-08-02T10:44:00.002-04:002009-08-02T10:50:07.981-04:00

Occasionally I'll post news items that I come across for all to review - Directly From their FeedArticle Date: July 29, 2009 3:00 PDTAn 11th patient taking Biogen Idec's multiple sclerosis (MS) drug Tysabri has developed a potentially deadly brain infection. In the latest confirmed case of progressive multifocal leukoencephalopathy, or PML, the patient took Tysabri for 29 doses, continuing the

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0tag:blogger.com,1999:blog-9157929926089617061.post-16953182542525111342009-07-17T08:22:00.009-04:002009-07-18T08:33:19.583-04:00

Just read through a magazine I had received in the snail mail this morning - called Action. It is put out by the United Spinal Association. Evidently, I received it as a member of the Mid-Florida Chapter of the MS Society, and I'm glad it was sent to me.It is really quite good, easy to read/follow; and I must admit quite appropriate articles on issues like urinary retention and bowel issues. You

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0tag:blogger.com,1999:blog-9157929926089617061.post-50923923653431526562009-07-16T07:11:00.012-04:002009-08-03T14:50:02.842-04:00

Once again I found myself in the Emergency Room yesterday - with the same issue I've had for 10 years - my urinary tract - or sphincter muscles - go spastic, and I can't void. Yes, it is exactly what it sounds like, I can't pee.If you've never had this issue, and I truly hope you don't - the pain is immense. The remedy is quite medieval, as a tube needs to be slid up where no man wants a tube

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0tag:blogger.com,1999:blog-9157929926089617061.post-44547063437768010632009-07-11T06:51:00.003-04:002009-07-19T06:10:33.870-04:00

The other day my wife and I were driving around, looking at properties in our area (did I tell you I'm a Real Estate Agent) and that good old feeling of "I gotta go NOW, and I mean NOW..." came across me. Those of you with this wonderful issue know what I mean. Now fortunately, we were in a particularly rural area and I was able to relieve "the pressure" by pulling off the road - well, you get

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0tag:blogger.com,1999:blog-9157929926089617061.post-26079088797154719912009-07-08T06:50:00.001-04:002009-07-12T07:39:57.940-04:00

They call it fatigue, but I just don't seem to get a full nights' sleep anymore. So can't fatigue be caused by lack of sleep, too? On a good night, I only get up once for that urgent bathroom call, usually around 2am, and go back to sleep, and get up around a more civilized 7am. But recently, I've been waking at 4:00, and wide awake!Now that I write about it, I don't mind it as much as one would

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com1tag:blogger.com,1999:blog-9157929926089617061.post-50196001307779049382009-07-04T15:30:00.001-04:002009-07-12T07:41:17.491-04:00

Here are some descriptions that I have used over the years to desribe what it feels like to live with MS:To Coffee Drinkers: You know how you feel before you have your first three cups of coffee a day - well, that is how I feel on a good day.Describing Symptoms: They are like a light switch, they are either on or off and the juice is either flowing or it isn't.To a New York Yankees Fan: MS SUCKS!

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0tag:blogger.com,1999:blog-9157929926089617061.post-25764737479272566952009-07-04T14:19:00.002-04:002009-07-12T08:18:39.217-04:00

Last week was my one year anniversary of taking Copaxone - and it has become part of my morning routine - what I fondly call the 4 S's. You know, Shower, Shave, Shot & S$#@ (I know it doesn't rhyme, but it does roll of the tongue if you say it really fast). Now to be honest, I really only do 2 of the S's religiously - the Shave and the Shot. If I didn't do so many video conferences, I probably

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0tag:blogger.com,1999:blog-9157929926089617061.post-87477922304516888862009-07-04T07:41:00.003-04:002009-07-19T06:07:57.048-04:00

I'm a 52 year old male with Multiple Sclerosis. In my younger years, I considered myself a "jock", with 5 varsity letters in High School, and 2 varsity letters at University. I have a BS and an MBA degree - and was living a successful corporate executive life, travelling globally 50% of the time - including being expatriated 6 years to Europe.I went to college in the Midwest - and was recruited

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0tag:blogger.com,1999:blog-9157929926089617061.post-77989151122421401772009-07-04T06:41:00.001-04:002009-07-12T07:43:10.704-04:00

Today is the 4th of July - known in the US as Independence Day. After thinking about writing a blog on Multiple Sclerosis and Living for as long as I can remember (or as long as Blogs have been around) - I'm finally taking the leap - one more step in my journey to Independence from the shackles of this disease ... as the Dao de Ching said - "The journey of a 100 miles starts with one step."I'm

Nick Marazitahttp://www.blogger.com/profile/09415550334552714103noreply@blogger.com0